By Pamela D. Wilson, CSA, MS, BS/BA, CG
A significant portion of individuals receiving caregiving support continue to live at home with the support of informal caregivers, defined as family members and friends. These informal caregivers provide significant amounts of physical and hands on care at the expense of their own time in careers, raising families, health, and well-being.
Informal caregivers supporting loved ones to remain at home will sometimes retain community assistance that includes: in home caregiving assistance or will participate in the use of adult day programs for respite or as a bridge to assisted living or memory care. Costs of care for adult day centers average $70-80 per day as compared to in home caregivers averaging $28 per hour, assisted living communities averaging $4-5,000 per month, memory care communities averaging $5-8,000 per month and nursing homes averaging $300 or more per day.
Care recipients react negatively to caregivers who are angry, stressed, impatient, or feeling guilty about the care situation. Much like horses have intuition, individuals with memory loss look to caregivers for a sense of safety and security. How many times have you heard an individual say, “I don’t like this horse (dog or another animal) and it knows I don’t like it.”
Individuals with dementia, are observant of body language, tone of voice, levels of respiration, adrenalin levels, and everything in their surroundings that might be perceived as negative or threatening.
Persons with memory loss respond to the actions of persons providing care that include family, friends, and paid caregivers. They respond negatively to persons who respond negatively or who are perceived to be threatening versus comforting.
Adult day programs offer emotional and financial benefits for informal caregivers and loved ones needing care. Learn more about the benefits to preserve your well-being and emotional life.
Adult day programs serve as a financially viable option to reduce stress for caregivers and to decrease behavioral episodes and improve sleep for care recipients. Many caregivers are unaware that adult day programs exist. Research of caregivers with a loved one diagnosed with dementia, indicates that only about 10% had ever used adult day programs or similar community services.1 Levels of depression and caregiver stress are significant and often result in the caregiver becoming more ill than the person who receives care.
Attendance at an adult day program for two or more days a week, provides an emotional period of respite for the caregiver. This expected break allows the full-time caregiver to attend to their own needs, engage in activities with others, or simply rest. The mental knowing that for example, on Tuesday and Friday, I can do whatever I want offers a sense of freedom for a caregiver who may feel tied to their loved one twenty-four hours a day and seven days a week.
For part-time caregivers who may visit a loved one daily or sleep over at night, day care may offer a less expensive option to hourly caregivers.
The daily activities offered by day care programs help maintain the cognitive and physical function of the care receiver and support more positive interactions between the caregiver and care receiver. Remaining isolated at home with no outside activity or socialization is detrimental to the long term cognitive and physical ability of a person with memory loss
One of the positive factors of attending a day programs for a care recipient is a decrease in physical or verbal behavioral problems due to a reduction in boredom or isolation. Care recipients who are awake during the day, rather than being at home and napping all day, are likely to sleep better at night. Social interaction is proven to offer health benefits. Physical activity at day programs improves physical strength and appetite.
Caregiving is a stress filled activity. Accessing a day program has the potential to reduce caregiving stress, depression, anger and result in more positive experiences between the caregiver and care receiver
1 Logsdon, R. et al. Memory Care and Wellness Services: Efficacy of Specialized Dementia Care in Adult Day Services. The Gerontologist, 2016, Vol. 56, No. 2, 318-325. Doi: 10:1093/geront/gnu012.
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